We were hoping by today that we would out of the ICU, but Joshua decided to make other plans.

Over the past 3 days, Joshua has been having these spells of irregular heart rhythm. From what they can tell, it is different then the ones he had a while ago and seem to be related to him having two SA nodes in the atria of the heart (look it up...pretty fascinating). His heart rate gets fast, he gets sweaty, limp and his EKG is very weird. They are trying to figure out what is causing all of this so they can treat it. Hopefully it will be something simple.

Another thing that showed up this morning was his glucose levels were pretty low. After testing it a few times and it still being low, they sent a bunch of labs in to see why that is happening. Hopefully that won't add any more complications to this recovery.

Joshua is such a sweet baby. When you look into his eyes, he has such wisdom and love in them. I feel so blessed to be his mom. Hopefully we will be out of the icu soon and on our way back home!

One day, one of our nurses put him in this cute sleeper for the day.  It was so good to see him in real clothes and look relatively normal!

This is him getting is Echo done.  It is basically an ultrasound of the heart where they check function and flow. Everything came out normal.  This was our first experience with have Joshua sedated for his echo, at least with us in the room.  I was not really happy with the sedation medication they gave him (it was called Ketamine...for those of you who know), since it didn't knock him out very well and he had a really hard time coming out of it.  He was really mad and it took a little longer than I would have liked.  I hope next time they can use something else.

In the mean time, we are having a lot of snuggle time!

Yesterday I finally got to hold Joshua for the first time since before his surgery.  We were not allowed to hold him for a lot of reasons, but the last thing that was keeping us from being able to was his central lines.  These lines went directly to the heart and there is a high risk of infection, so we have to limit the amount of time holding and touching to decrease the chance of them getting infected.  However, we don't have to worry about that anymore because they got taken out yesterday!  So, I spent the afternoon snuggling :)  It was awesome!