Thursday, December 13, 2012

Improvements and pictures!!

Well, I thought I would give a quick update on how little Joshua is doing.  He continues to improve with his eating skills.  Right now, our goal is to have him eating 68cc (a little over 2 oz) of milk at each feeding (every 3-4 hours).  Currently, he is averaging about 35 cc by mouth, and then the rest has to take through his feeding tube.  The reason he is struggling so much is because he actually gets too tired to keep sucking.  The doctors say this is extremely normal for "heart babies." All we can do right now is continue to have him practice.

Today we also had a visit from the early intervention program, Kids Who Count.  This program is designed to help with early childhood education and make sure kids are reaching their milestones and that they will be ready to go to preschool by age three. The doctors at Primary Children's highly recommended us getting into this program to be sure Joshua is reaching his milestone, especially with his feedings.  We will be getting consistent visits from a Occupational Therapist, who will work with Joshua on his feedings and also work with his other skills, and a nurse, who will watch from the medical side. 

Finally, I thought it was time to have a few pictures on this blog!  Here is our journey over the last two weeks in pictures!!
Getting ready to deliver!  Instead of the planned induction on the 4th, I went into labor on Saturday the 1st!  After waking up with contractions that morning, little Joshua was born at 10:02pm.

We were not expecting to be able to hold him right away, but just an hour after he was born, the nurse in the NICU bent a few rules and let us hold him before he got moved over to Primary's.  It was a precious moment :)

All his little tubes, IV's, and EKG leads.

Dad holding him for the first time!

Even though Primary Children's is just next door and connected to University Hospital with a walkway, the Life Flight team was still called in to transport our little man over.  He had quite the ride over, don't you think?

This is one of my favorite pictures.  This was taken the first time I got to visit him in the Cardiac ICU over at Primary Children's. 

Once we found out about our difficult decision of whether or not to proceed with surgery or not, we have been calling on our Heavenly Father a lot.  We decided to go to the temple on night and had our parents come with us.  It was a wonderful experience and seeing the lights on Temple Square was a nice little perk :)

We decided to bless little Joshua in the hospital since both sets of our parents were in town and we were not planning on taking him to church any time soon.  I didn't know the spirit could be so strong in such a small hospital room.  Tim did a wonderful job and gave a beautiful blessing.

The crowd who came to the blessing.

Heading home!  On Sunday, December 8, after a week and one day in the hospital, we got to go home! 

It did not take long to settle into home life.  Logan has been an awesome older brother and LOVES holding his little brother!

He is also a big help when it comes to giving Joshua his bottle and helping clean out the feeding tube pump.  We LOVE being home!

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Joshua Kent Ipson was born December 1, 2012 with a very complicated combination of congenital heart defects. After 2 1/2 months of fighting for his life, he passed away on February 13, 2013. We invite you to share our experiences as we grieve his loss, rejoice in God's plan, & keep Joshua's message of hope alive.
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