Wednesday, February 27, 2013
That constant ache
9:27 AM
If you ever talk to a mom that has lost a child, you may have heard them talk about the constant ache in their chest/heart. I have noticed this more and more as I try to get back to some sort of normal life. Yesterday, that ache was especially noticeable.
Throughout the day, I would find myself stopping in the middle of a task and ask myself, "Why do I feel like I have a little heartburn," and milliseconds later, I would remember Joshua and realize it is my heart aching for him. It really does feel like a weird form of heart burn. Or, I guess it is more like that feeling you have right before you start to cry, but it is constant and I am literally having to learn to live my life with it.
I have heard other "angel moms" say that this ache does get a little less intrusive, but it never really goes away. Even then, apparently it will come out of no where and just take your breath away. I have those moments a lot right. One day, Logan found a piece of medical tape that had somehow gotten in the couch. I had to recover for a minute as that ache basically punched me in the stomach from seeing that reminder of little Joshua. Or, when I had to give Logan some Tylenol and I pulled out the medicine syringe. I couldn't help but think about all the medications we had to give Joshua and the punch in the stomach happens again. It really does happen when I least expect it and it usually takes me a few seconds to recover.
There are other days that my whole body just feels heavy. It is like the ache in my heart is radiating to the limbs of my body and everything feels harder to move. These are the days I find myself praying a LOT. If I think too much or dwell too much on missing Joshua, the day can go downhill fast. These are the days I take extra time to study my scriptures and learn more about the spirit world and raising children in the millennium. These gospel truths are what keep me hopeful and from falling into darkness. These are also the days that Heavenly Father testifies these truths so strongly.
I don't know if I see much change with the ache from day to day yet. However, if I compare how it was a week ago, I can tell it is getting a little better...or, at least, I am getting better at living with it.
Throughout the day, I would find myself stopping in the middle of a task and ask myself, "Why do I feel like I have a little heartburn," and milliseconds later, I would remember Joshua and realize it is my heart aching for him. It really does feel like a weird form of heart burn. Or, I guess it is more like that feeling you have right before you start to cry, but it is constant and I am literally having to learn to live my life with it.
I have heard other "angel moms" say that this ache does get a little less intrusive, but it never really goes away. Even then, apparently it will come out of no where and just take your breath away. I have those moments a lot right. One day, Logan found a piece of medical tape that had somehow gotten in the couch. I had to recover for a minute as that ache basically punched me in the stomach from seeing that reminder of little Joshua. Or, when I had to give Logan some Tylenol and I pulled out the medicine syringe. I couldn't help but think about all the medications we had to give Joshua and the punch in the stomach happens again. It really does happen when I least expect it and it usually takes me a few seconds to recover.
There are other days that my whole body just feels heavy. It is like the ache in my heart is radiating to the limbs of my body and everything feels harder to move. These are the days I find myself praying a LOT. If I think too much or dwell too much on missing Joshua, the day can go downhill fast. These are the days I take extra time to study my scriptures and learn more about the spirit world and raising children in the millennium. These gospel truths are what keep me hopeful and from falling into darkness. These are also the days that Heavenly Father testifies these truths so strongly.
I don't know if I see much change with the ache from day to day yet. However, if I compare how it was a week ago, I can tell it is getting a little better...or, at least, I am getting better at living with it.
Tuesday, February 26, 2013
Part of my heart is in heaven
12:41 PM
I wanted to share this beautiful imagery with all of you because I really fell like it represents how I feel. Thank you to my new friend from the Intermountain Healing Hearts Angel Moms group for writing the ending of this story and helping us all put our feeling into words.
There is a story that circulates support groups and blogs of families and patients with heart defects. It tells of a beautiful day in Heaven when Jesus is rounding up his tiniest angels, to go live on earth, and be born. One of the sweetest angels says to Jesus “I don’t want to leave, I like it here, and I will miss you”. He reassures the scared little angel that everything will be okay, and that he is just going for a visit. He is still not swayed on this idea. So Jesus kneels down, and says, “How about if you leave half of your heart here with me and take the other half with you, will that be okay?” The angel smiles and says, “I guess that will work”. But the little angel is still a little scared. “Will I be okay with only half of my heart?” Jesus replies, “I have other angels there that will help out, and you will be fine.” Then Jesus gives the angel more details about his plan. He says “When you are born, your mommy will be scared, so you have to be strong, and when you feel weak just remember that I have the other half of your heart. And when its time to come back to heaven, I will make your heart whole again. Always remember that you are not broken, just torn between two loves.” -Author Unknown
I wanted to finish this story for Joshua.
When he returned to Heaven, amid tears of joy and hugs in reunion, Jesus asked, “How was your turn on Earth?” The little angel replied, “It was beautiful- so many arms of warmth and love to hold me, smiles through teary eyes to greet me. A king couldn’t have asked for more!” Then tears appeared in Joshua’s eyes. “My sweet angel, what is wrong?” Jesus asked and pulled him close. ” I think when I left, I broke their hearts, ” he whispered.
“Quietly, Jesus reached in His pocket and pulled out the other half of Joshua’s heart. Tied to it with fine silvery threads were the pieces of hearts, of all those the little angel had touched in his brief life. Even as he looked the chain grew and grew.
” My dear little one,” Jesus said, “You did not break their hearts. You brought a piece of them back with you. And one day, they, like you, will return to me for the other piece of their hearts.”
Luke 12:34 -For where your treasure is, there will your heart be also.
There is a story that circulates support groups and blogs of families and patients with heart defects. It tells of a beautiful day in Heaven when Jesus is rounding up his tiniest angels, to go live on earth, and be born. One of the sweetest angels says to Jesus “I don’t want to leave, I like it here, and I will miss you”. He reassures the scared little angel that everything will be okay, and that he is just going for a visit. He is still not swayed on this idea. So Jesus kneels down, and says, “How about if you leave half of your heart here with me and take the other half with you, will that be okay?” The angel smiles and says, “I guess that will work”. But the little angel is still a little scared. “Will I be okay with only half of my heart?” Jesus replies, “I have other angels there that will help out, and you will be fine.” Then Jesus gives the angel more details about his plan. He says “When you are born, your mommy will be scared, so you have to be strong, and when you feel weak just remember that I have the other half of your heart. And when its time to come back to heaven, I will make your heart whole again. Always remember that you are not broken, just torn between two loves.” -Author Unknown
I wanted to finish this story for Joshua.
When he returned to Heaven, amid tears of joy and hugs in reunion, Jesus asked, “How was your turn on Earth?” The little angel replied, “It was beautiful- so many arms of warmth and love to hold me, smiles through teary eyes to greet me. A king couldn’t have asked for more!” Then tears appeared in Joshua’s eyes. “My sweet angel, what is wrong?” Jesus asked and pulled him close. ” I think when I left, I broke their hearts, ” he whispered.
“Quietly, Jesus reached in His pocket and pulled out the other half of Joshua’s heart. Tied to it with fine silvery threads were the pieces of hearts, of all those the little angel had touched in his brief life. Even as he looked the chain grew and grew.
” My dear little one,” Jesus said, “You did not break their hearts. You brought a piece of them back with you. And one day, they, like you, will return to me for the other piece of their hearts.”
Luke 12:34 -For where your treasure is, there will your heart be also.
Monday, February 25, 2013
Mommy Necklaces: Keeping Joshua close to my heart
4:49 PM
I was blessed to have many people thinking about how I could keep Joshua with me at all times. I had a lot of people give me a necklace that represented Joshua and I love every one of them! I love that I will be able to wear one of them with every outfit!
These necklaces have become so important to me. I feel like I can put one on and have a little piece of Joshua with me. I also love that I have multiple! Thank you to everyone who thought of this as a gift. I LOVE them all!!
These necklaces have become so important to me. I feel like I can put one on and have a little piece of Joshua with me. I also love that I have multiple! Thank you to everyone who thought of this as a gift. I LOVE them all!!
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This one was give to us by some people at Tim's work. I LOVE that it has both my boys on it. I hope I will be able to add to this with more kids when the time is right. |
Sunday, February 24, 2013
The healing power of purging!
2:36 PM
Being in and out of the hospital, your house tends to be neglected. We were only home for a few days at a time and when he had to go back to the hospital, we usually only had a little bit of time to prepare. We would throw things into bags and the rest of the house was left in shambles. Needless to say, after 2 1/2 months of that, our little apartment was in sad shape.
The Monday after the funeral, Tim and I both had this incredible urge to clean house...big time. It would be the start of the new chapter in our life and we wanted a clean, fresh start. We were blessed to have both our mothers in town and we put them to work (thanks, moms!!). We hit every room in the house, starting with our bedroom.
Our bedroom was probably the room in the worst shape. It was the room we could throw everything into and close the door to the public. We took down the bassinet (which Joshua only slept in maybe 3 times...but it was still hard), we cleared out all the medical supplies Joshua used (oxygen tubing, syringes, medical tape, etc.) and got them ready to give away to other heart families we knew, and we rearranged our furniture. We made a stack of papers to file away and started our memory box of Joshua. It felt good to give everything a place and to have our room as a safe haven once more.
The kitchen and spare room were next on the list. My sweet mother-in-law went through every cupboard in the kitchen and wiped them all out. We threw away what we didn't use and cleared out the fridge. Everything got disinfected and wiped down.
By far, the hardest room was Logan's room. It was where I kept all the baby clothes, toys, and regular baby supplies. I had pulled out all the baby clothes through 6 months and it just felt wrong to put them all away at once. Normally, you would slowly put away clothes as your child grew out of them, but here I was, putting everything away all at once. It was a reminder of things I will never be able to do with Joshua in mortality. Never get to celebrate a birthday, never get to see him outgrow a size and move on to the next one. Never see him sit in the bumbo chair and learn to sit up on his own. My heart ached so much and the tears flowed freely. However, with every box we filled, I found myself healing just a little...Joshua was there with me telling me it would be all right. Joshua wanted me to move on...to start thinking about the future.
Finally, we did the living room. We did some serious rearranging in this room because I wanted a wall to put our family pictures on. It was a MESS for a while, but I LOVE how everything turned out. In the end, we probably threw away 6 large garbage bag full of garbage, a full recycle bin full of stuff, and many trips to DI. My mom said it best when she said, "It is like you guys are getting ready to move, but you get to enjoy it without the moving part!"
As we start the next chapter of our life, the reorganizing of our apartment was the perfect beginning. We felt ready to face the challenge of life without Joshua and to begin living our life more perfectly so we can live with him again someday.
The Monday after the funeral, Tim and I both had this incredible urge to clean house...big time. It would be the start of the new chapter in our life and we wanted a clean, fresh start. We were blessed to have both our mothers in town and we put them to work (thanks, moms!!). We hit every room in the house, starting with our bedroom.
Our bedroom was probably the room in the worst shape. It was the room we could throw everything into and close the door to the public. We took down the bassinet (which Joshua only slept in maybe 3 times...but it was still hard), we cleared out all the medical supplies Joshua used (oxygen tubing, syringes, medical tape, etc.) and got them ready to give away to other heart families we knew, and we rearranged our furniture. We made a stack of papers to file away and started our memory box of Joshua. It felt good to give everything a place and to have our room as a safe haven once more.
A bunch of medical supplies we were organizing from our bedroom. TONS of syringes, lotion and soap from the hospital, the pinks bins from the hospital, and we had to decide what to keep and what to give away. |
More boxes of medical supplies. It was amazing to all of us how much stuff was required for little Joshua. My mom was impressed that we knew what all of it was called and used for ;) |
More piles of stuff to organize. We even gave this heirloom chair to a cousin! (That was a big step for my sweet husband) |
The piles of stuff on my dresser. Pleased to say it is all gone! |
Cleaning out the linen closet. That box is full of expired medications and the white bag is more garbage. We also had a bag full of DI stuff from this closet as well |
But look how wonderful it looks now! I love it :) |
We did the same thing in the bathroom...believe it or not, this is the cupboard under the sink in our bathroom! I have never seen so little in that cupboard! |
By far, the hardest room was Logan's room. It was where I kept all the baby clothes, toys, and regular baby supplies. I had pulled out all the baby clothes through 6 months and it just felt wrong to put them all away at once. Normally, you would slowly put away clothes as your child grew out of them, but here I was, putting everything away all at once. It was a reminder of things I will never be able to do with Joshua in mortality. Never get to celebrate a birthday, never get to see him outgrow a size and move on to the next one. Never see him sit in the bumbo chair and learn to sit up on his own. My heart ached so much and the tears flowed freely. However, with every box we filled, I found myself healing just a little...Joshua was there with me telling me it would be all right. Joshua wanted me to move on...to start thinking about the future.
Finally, we did the living room. We did some serious rearranging in this room because I wanted a wall to put our family pictures on. It was a MESS for a while, but I LOVE how everything turned out. In the end, we probably threw away 6 large garbage bag full of garbage, a full recycle bin full of stuff, and many trips to DI. My mom said it best when she said, "It is like you guys are getting ready to move, but you get to enjoy it without the moving part!"
In the middle of the purge...what a mess!! |
This is what we got after all of that. My beautiful bookshelf. |
Our new TV stand from Ikea. It changes the whole look of the room and I LOVE IT! Thanks so my amazing husband for putting it together :) |
My family picture wall. |
Displaying some of the flowers from the funeral. |
Saturday, February 23, 2013
First trial run alone...
2:22 PM
Well, today is my first trial run being alone since Joshua passed. My mom left this morning and Tim went to work for a few hours, leaving me home alone with Logan boy. To be honest, I am doing a little better than I thought I would, but not great. I find myself thinking way too much...too much about Joshua and what could have been. Today, I am really feeling the ache in my heart...which I have been able to handle pretty well until today.
We put up our family pictures yesterday. I LOVE how it looks, but I couldn't help but think about how there won't be any more family pictures with our whole family...there will always be someone missing. We printed some pictures out of Joshua to hang up on the wall as a little memory wall and I find myself looking at them A LOT. I look at the picture and close my eyes and remember the moment that picture was taken. I can close my eyes and see his expression and remember kissing his cheeks. I hope those memories don't fade too quickly.
Anyway, I am allowing myself to have a little bit of a hard time today...but I try hard not to stay in that too long. The last thing I need is to spiral down into depression. Everyone, just give your kids an extra hug and kiss today...and maybe shoot a quick video for me.
We put up our family pictures yesterday. I LOVE how it looks, but I couldn't help but think about how there won't be any more family pictures with our whole family...there will always be someone missing. We printed some pictures out of Joshua to hang up on the wall as a little memory wall and I find myself looking at them A LOT. I look at the picture and close my eyes and remember the moment that picture was taken. I can close my eyes and see his expression and remember kissing his cheeks. I hope those memories don't fade too quickly.
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Our family picture wall put up yesterday. I love being able to look up at my boys. |
Anyway, I am allowing myself to have a little bit of a hard time today...but I try hard not to stay in that too long. The last thing I need is to spiral down into depression. Everyone, just give your kids an extra hug and kiss today...and maybe shoot a quick video for me.
Friday, February 22, 2013
Dear Joshua
12:59 PM
At Joshua's funeral, Tim and I both felt very strongly that we needed to speak. We were the ones that knew Joshua best and we were the ones that had the most to say. I wanted to share the words that I spoke at the funeral. I am grateful I have them written down because on the hard days, I can read through the words and the spirit of the Lord brings back the peace that I felt when I first wrote them.
I am overwhelmed by the love and support we have received
over the last few months and especially the past few days. It is sometimes hard to believe that a little
person who was here for such a short amount of time could have impacted so many
people. I am sorry for those of you who
did not get to meet Joshua, but I hope you have felt his sweet spirit today and
that we can help you understand a little of who he was.
I have thought long and hard about what I want to say
today. So many things have been running
through my head. However, the night
after Joshua’s passing, I had a very difficult time sleeping and decided to
just start typing my thoughts. They
ended up being a letter to my boy and I wanted to share that letter with you
today.
My dear sweet Joshua-
Oh what a blessing the last two and a half months have been
for me as your mother. As I ponder your
short life, I can’t help but think about why you were sent to us and what your
mission was on this earth. Some may
question whether a spirit can fulfill a mission in such a short amount of time,
but as one of the people closest to you, I can testify that you were able to
complete so much. The Lord is so pleased
with the way you dealt with your trials and all you were able to
accomplish. Let me outline just a few of
those accomplishments.
1)
First, you radiated the Holy Spirit. I can’t tell you the countless times people
would walk into your room and make note of how special you were. Every nurse, every doctor, every visitor, and
even other patients would comment on you.
I can testify that the Lord’s love shined through those beautiful, dark
eyes and he was able to use you as his instrument to help people feel that
love. Just look at all the people that
have come here today to celebrate you…even those you did not meet felt
that. What a special gift the Lord gave
you and you used it perfectly.
2) Next, you taught us to live in the moment. So often here in mortality, Joshua, we
sometimes forget how short of a time we have here. You probably don’t really understand that completely
because of your situation, but as we get older sometimes we take for granted
how much time we have and we tend to put things off. When you were first born, we had no idea how
long we would be able to keep you, so your father and I cherished every single
moment. Every snuggle, every kiss on the
cheek, every smile and pleasant look, and even every cry. Every second of your short life was a
blessing. Even the smallest, seemingly insignificant moments have become
cherished memories. I now know that it
is in those moments that the truest joy can be found and I will transfer that
lesson to every other aspect of my life.
3) Next, you helped me realize how close we are to
heaven. Joshua, I could always tell that
the veil between us and Heavenly Father was so thin for you. Sometimes, you would be looking up at the
plain, white ceiling and just be staring at what seemed like nothing. Then,
suddenly, your face would light up as if you were ready to smile. I would get
chills as the Lord testified to me that you were looking at your guardian
angels. They were giving you the
strength to hang on just a little longer and I know they were there to guide
you to heaven when that time came. I
like to think that all of us have a few guardian angels, especially during the
hard times of our life. If we can humble
ourselves and become more like you, little Joshua, the veil can open for us and
we will feel the Savior near.
4) Finally, you helped me understand the Plan of
Salvation. I remember over the years
before you came into my life, I questioned how strong my testimony was. I never questioned that I knew the gospel was
true, but I didn’t really know if it would stand a true test, mostly because it
had never really been tested before.
Joshua, you were the test I needed to know, beyond a shadow of a doubt,
that this gospel is true. I know that
you are waiting for us on the other side of the veil. I know that Heavenly Father welcomed you with
open arms and will watch over you until we can join you. I know that you are surrounded by family that
loves you, especially your great grandparents, your cousin Tyler, and your
cousin Kate. We are all more determined to live our life in such a way that we
can be with you again in the Celestial Kingdom.
I promise you, Joshua, that I will do everything I can to be with you
once again and I can’t wait for that blessed day!
Joshua, I thank you for completing your mission so
perfectly. Until we meet again, I will
miss those beautiful dark eyes. I will
miss kissing those chubby cheeks and the way you smelled so sweet. I will miss snuggling you up in a blanket and
helping you fall asleep when it was hard and you weren’t feeling good. I will miss your screams when I changed your
diapers, and how relieved you were when you had the clean one on. I will miss your presence in the room as I
played with your older brother. I will
miss giving you a bath, especially since that always made you feel better. Joshua, I will miss all of you, oh so
terribly.
But, while the immediate
hurt is so strong, I can’t help but think about how wonderful it will be to
raise you in the millennium. It will be
a time of great joy, Joshua, when all the world will be under Christ’s reign
and Satan will be bound. We will be able
to live together and I will be able to love you without any other worries. You will be able to live out your childhood
without hospitals, surgeries, medicines, or pokes…just pure happiness, like
what childhood should be. You will be
able to run around with all the other kids without worry of weariness or being
left out because of physical complications. Joshua, it will be such a special
time and I can’t wait to have that perfect time with you and the rest of our
family.
I am reminded of what the Prophet Joseph
Smith taught. He also lost children and
had a very unique perception on the subject.
He said, “The Lord takes many away, even in infancy, that they may
escape the envy of man, and the sorrows and evils of this present world; they
were too pure, too lovely, to live on earth; therefore, if rightly considered,
instead of mourning we have reason to rejoice as they are delivered from evil,
and we shall soon have them again.” I do
rejoice for you, Joshua. I am so glad
you are in a place of happiness.
You took a little piece of my heart with you back to Heaven,
but my testimony of the gospel will sustain me until we can meet again and my
heart is made whole. I know you will do
well with whatever task Heavenly Father has in store for you now. As your mother, I give you this
advice…complete it as well and perfectly as you did your mission here on
earth. You are a powerful tool for our
Heavenly Father and I can’t wait to hear about what He has you do for him on
the other side of the veil.
Good bye for now, sweet Joshua. Thank you for letting me be your mom. May God be with all of us left behind until that blessed
day when we meet again.
Thursday, February 21, 2013
Time...it's a funny thing
3:06 PM
Everyone has had those experiences with time that just seem strange. You know the ones I mean....the morning you wake up and you KNOW it is a Tuesday, but you could have sworn it was Friday already...or that moment you look at the clock and expect it to say 2pm and it is really 5pm and you better start thinking about making dinner...or you look at the calendar and it says it is the 28th and you wonder where the last 2 weeks went. Time really is a funny thing.
It has been one week since Joshua passed away. Only seven days since that crazy morning. As I think about all that has happened, I can hardly believe we fit it all into seven day. Not only did we plan and complete his funeral, all the family that has come and gone, and all the cleaning and straightening out we have done, but all the emotional changes I have gone through. I think about how I was emotionally 7 days ago, I can't believe how much better I am doing already. It doesn't seem like it should be, but it is...but it feels like it has been so much longer than a week.
Another funny thing about time: I have had a lot of people ask me how I am doing and feeling and the only way I can explain it is that I feel like I am going back in time...back in time before we had Joshua. Suddenly, I am able to do all the things I was doing before...we can go to the library whenever we want, I can run to the store without worrying about an oxygen tank and feeding tube, and it is just me and Logan again while dad is at work. It really does feel like I have gone back in time, but I am a completely different person. Joshua really did change me as a person. I feel closer to my Savior. I am finding myself worrying less about things that are just not important any more. I hug and kiss Logan a lot more. Really, I have gone back in time, but it is not the same.
It got me thinking about how often we complain about the stage of life we are in...or complain about wanting to go back to another time. After the last few days, I would not recommend it. I have thought so many times that I would love to go back and do my freshman year of college again. I thought about how nice it would be to have my wedding again. So many times, I have heard people talk about "the good old days." In reality, we should all just be happy with where we are in life and be grateful that time keeps moving forward. Each day, we change just a little bit. The Lord has given us experiences in the order we need them to happen. It feels so much better to be moving forward with life, to be growing and experiencing new things. That is the natural thing to do. I hope we can all be grateful for the things we have experienced, learn from the past, and look forward to the future.
It has been one week since Joshua passed away. Only seven days since that crazy morning. As I think about all that has happened, I can hardly believe we fit it all into seven day. Not only did we plan and complete his funeral, all the family that has come and gone, and all the cleaning and straightening out we have done, but all the emotional changes I have gone through. I think about how I was emotionally 7 days ago, I can't believe how much better I am doing already. It doesn't seem like it should be, but it is...but it feels like it has been so much longer than a week.
Another funny thing about time: I have had a lot of people ask me how I am doing and feeling and the only way I can explain it is that I feel like I am going back in time...back in time before we had Joshua. Suddenly, I am able to do all the things I was doing before...we can go to the library whenever we want, I can run to the store without worrying about an oxygen tank and feeding tube, and it is just me and Logan again while dad is at work. It really does feel like I have gone back in time, but I am a completely different person. Joshua really did change me as a person. I feel closer to my Savior. I am finding myself worrying less about things that are just not important any more. I hug and kiss Logan a lot more. Really, I have gone back in time, but it is not the same.
It got me thinking about how often we complain about the stage of life we are in...or complain about wanting to go back to another time. After the last few days, I would not recommend it. I have thought so many times that I would love to go back and do my freshman year of college again. I thought about how nice it would be to have my wedding again. So many times, I have heard people talk about "the good old days." In reality, we should all just be happy with where we are in life and be grateful that time keeps moving forward. Each day, we change just a little bit. The Lord has given us experiences in the order we need them to happen. It feels so much better to be moving forward with life, to be growing and experiencing new things. That is the natural thing to do. I hope we can all be grateful for the things we have experienced, learn from the past, and look forward to the future.
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Joshua Kent Ipson was born December 1, 2012 with a very complicated combination of congenital heart defects. After 2 1/2 months of fighting for his life, he passed away on February 13, 2013. We invite you to share our experiences as we grieve his loss, rejoice in God's plan, & keep Joshua's message of hope alive.
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As I prepped for this 4 month anniversary, I hoped that I would feel Joshua's presence throughout the day. In my post yesterday, I wrote...
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Wow...what a difference 24 hours can make. I woke up this morning after a very rough night. I could not stop thinking about the ultrasound...
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